Extensive media coverage for public and medical awareness
 

Recognition (as serious as cancer) of the disease and debilitating aspects
 

Improve support for patients and families, support groups nationally, counselling, and other organisations the patients would benefit.
 

Information used to describe the disease, to be universal and understood within all sectors of medical, patient would benefit.
 

Literature to be available to all patients prior and upon diagnosis, to give guidance and support.
 

Rehabilitation support for all sufferers.




                                                                       NHS
 

GP’s to be able to identify a patient decline in health over the months etc
 

Improve medical knowledge through existing primary and secondary physicians using workshop methods.
 

Implement training and knowledge within the medical education facilities.
 

Implement Sarcoidosis units within more hospitals nationally, ideally one in every hospital. That has full expert secondary care specialists.
 

Develop a universal structure of testing used by all physicians.
 

Implement Customer Service training, for all medical staff of all levels.
 

On diagnosis full investigations on symptoms of Sarcoidosis.
 

New approach to diagnose and manage disease.
 

Assess new therapies.
 

Better means of testing to predict disease progression. (possible research matter)
 

Improve patient management. More attention should be devoted to educate primary care physicians on approach management of patients including when to refer patients for further evaluation and care.
 

Improve communications between patient, primary care and secondary care allowing better guidance and self management for patient awareness.
 

Improve patient management within secondary care.
 

New approaches are needed to diagnose cases and detect case clustering.
 

Better markers for assessing disease activity and predicting prognosis would aid clinical management of Sarcoidosis.
 

Improve awareness of Vit D with patient, primary and secondary care.


 

                                                               Research
 

How does UK research facility identify future methods to study and identify genetic, immunopathegenisis?
 

Better means needed to differentiate between remitting and chronic Sarcoidosis.
 

Better research to learn determinants of susceptibility of Sarcoidosis, optimal treatment strategies and reason for persistence.
 

Develop novel therapeutic interventions.
 

Corticosteroids has not been proven to be effective in reducing long term Sarcoidosis, just prolonging the course.
 

Funding.
 

                                                                Benefits

Smoother transition between benefit transferral.
 

Medical assessments forms to be redefined and easier to fill out.
 

ESA to establish and inform customers of appeal and complaints process, to include contact details.
 

ESA to establish a best practice policy to recognise Sarcoidosis as debilitating  restricting work requirements.